من نوروفیبروماتوز دارم، نوروفیبروماتوز مرا ندارد: تحلیل پدیدارشناسی تفسیری از سازگاری با نوروفیبروماتوز نوع یک
Dr Glenn Williams, Nottingham Trent UniversityHealth Psychology Update, 18 (1), 3-8
Qualitative methodology, Medical Sociology, Neurofibromatosis, Interpretative Phenomenological Analysis, Genetics, and Health Psychology
پرسشنامه کیفیت زندگی در بیماران مبتلا به نوروفیبروماتوز
درخواست از نویسنده مقاله برای اجازه استفاده از پرسشنامه کیفیت زندگی با نوروفیبروماتوز
Dear Dr. Nutakki
I have studied your research article about quality of life of NF1 patients. As a university researcher, faculty member and NF supporter I would like to conduct a similar study in our country for Iranian patients with NF1. I would be very thankful if you permit me to use the Adult PedsQL™ questionnaire. Perhaps the questionnaire needs to some revision based on our culture.
Meanwhile, I should mention that, I obey all ethical consideration in terms of citation of your research as the source of our work.
Thank you so much in advanced
Regards
Leila M Jouybari
PhD of Nursing Education
Golestan University of Medical Sciences, Gorgan, Iran
http://scholar.google.com/citations?user=LdMLQmQAAAAJ&hl=en
بسم الله الرحمن الرحیم. یا من اسمه دوا و ذکره شفاء.